Education and support for palliative professionals and volunteers in BC
Resources
“Hospice care allows patients to live until they
die, their families to live with them as they are
dying, and go on living afterwards ….. “
Elizabeth Kübler-Ross
Below are additional resources, mainly links and book titles, that can help you navigate your way through palliative care and grief for yourself or a loved one. Consider also searching for the local chapter or provincial organization of the involved disease. Please be reminded that organizations vary in their ability to update information, and their site addresses may change without notice. Remain curious however, there are many resources that can help a great deal.
Your local hospice or palliative care unit social worker and other staff members are one of the most helpful resources that you can use if you can’t find information you need here.
The NORTH SHORE HOSPICE, is located at 319 East 14th Street, North Vancouver. Telephone 604-904-6174.
Resources
Links
Local Palliative Resources
Healing retreats for patients, partners and professionals
National organization dedicated to advocacy and national standards in palliative care
Lower Mainland children’s hospice
BC Cancer Agency information regarding palliative care and coping with cancer
Counseling services in longstanding association with North Shore palliative services
Gives detailed information about palliative care services and resources on the North Shore, along with a comprehensive list of brochures.
Vancouver Coastal Health website related to Palliative Care
Local Grief Resources
Provincial society for grief support
A family camp for youth who have survived the loss of a parent, started on the North Shore
Counseling services in longstanding association with North Shore palliative services
An excellent lower mainland grief support resource for all ages including children and teens
Offers 2-3 adult bereavement support groups per year on the North Shore.
Other Websites
Room PE469, One Morley Avenue
Winnipeg, MB R3L 2P4
E-mail: info@virtualhospice.ca
Discusses issues around the Do Not Resuscitate (DNR) Order
Discusses issues around Health Care Directives (aka Living Wills)
The American Association of Hospice and Palliative Medicine website which features video presentations from and about palliative patients.
c/o Canadian Hospice Palliative Care Association
Annex B, Saint-Vincent Hospital
60 Cambridge Street North
Ottawa , ON K1R 7A5
Tel: 613-241-3663 or 1-800-668-2785 ext.222
Downloadable Files
Palliative care benefits form required for medication and equipment coverage
Jane Webley's power point presentation to LGHS Board Sept 09
Books
An endless number of books on an equal number of topics can be found. Odin books and Banyan Books are bookstores that have a discerning approach to self-help literature.
Many book titles will be available from your local public library. However, not every public library will carry alternate formats or other languages. These can be obtained through the Interlibrary Loan service at your public library, or for purchase through Amazon.com, or the above locations.
Titles are shown in their most recent edition. Where a book is published in languages other than English, this is noted. Alternate formats such as DVD, large print or talking book are noted where available.
Dying and Caregiving
Doubleday, 1997. 192 pgs.
Also published in Korean. Available in DVD and in large print
Poseidon Press, 1992. 221 pgs
Available in large print
Key Porter Books, 3rd edition, 2003. 310 pgs.
Follows Robert, an ALS patient, during the last 3 years of his life.
National Film Board, 2004. Available in VHS video
At 26, Luke has lived longer than most people with Duchenne Muscular Dystrophy. This is a portrait of a year in his life.
National Film Board, 2003. Available in VHS video
This follows Jocelyn, age 44, during the last four months of her life and her battle with cancer.
National Film Board, 2003. Available in VHS video
Tian Xia Press, 2003. 227 pgs.
Available in large print or audiobook
Knopf, 1997. 182 pgs. Also published in French
Scribner, 2000. 224 pgs.
Also published in French, Spanish and Korean. Available in DVD and in large print.
Station Hill Press, 1995. 163 pgs.
Simon & Schuster, 1997. 181 pgs.
Doubleday Canada, 2002. 317 pgs.
Doubleday, 1997. 262 pgs.
J. Wiley & Sons, 1999. 264 pgs.
Riverhead Press, 1999. 328 pgs.
Available in large print
Celestial Arts, 2001. 201 pgs.
McClelland & Stewart, 2001. 201 pgs.
Rider Press, 10th edition, 2002. 441 pgs.
Also published in Chinese.
New World Library, 2003. 75 page book with CD
Grief and Bereavement
Oxford University Press, 2000. 289 pgs.
Health Communications, 2003. 207 pgs.
DaCapo Press, 4th edition, 2004. 260 pgs.
Simon & Schuster, 1994. 317 pgs.
Open Heart Seminars, 2000. Audiocassettes.
Lifestyle Publisher, 1994. 384 pgs.
Harper Collins, Revised edition, 1998. 192 pgs.
Available as an audiocassette
Anchor Press, 20th edition, 2001. 202 pgs.
Available as an audiocassette and VHS video
Bantam Books, 1961. Reissue 1983, 160 pgs.
Available in large print, audiocassette and CD/MP3
Warner Books, 2003. 368 pgs.
La Mariposa Press, Revised edition, 2007. 232 pgs.
Available on CD.
Northstone Publishing, Revised edition, 2001. 192 pgs.
Wiley, 2000. 256 pgs.
McClelland & Stewart, 4th revised edition, 1997. 68 pgs.
Inspirational/Comfort and Support
Hyperion Press, 2004. 196 pgs.
Also published in Chinese, French, Korean and Spanish. Available as an audiobook and DVD.
CD available from Lions Gate Hospital, 7 West Palliative Care.
Contact: 604-984-3743. Cost: $15 or by donation
Riverhead Press, 10th edition, 2006. 337 pgs.
Available as an audiobook and in large print
Riverhead Press, 2001. 380 pgs.
Children and Grief
St. Martin’s Press, 1994. 221 pgs.
Routledge, 1996. 328 pgs.
Companion Press, 1991. 45 pgs.
Also available: A Guide for Parents, Teachers and Counselors. 52 pgs.
Companion Press, 2001. 128 pgs.
Companion Press, 2001. 128 pgs.
Children and Grief - Juvenile Literature
Little, Brown & Co., 1998. 32 pgs. Ages 4 - 8
Harper Collins Canada, 2006. 176 pgs. Ages 10 and up
Available as DVD, video, audiobook and in large print
Harper Collins. 50th anniversary edition, 2002. 213 pgs. Ages 6 and up
Available as an audiobook, in DVD and VHS video
Harper Collins, 1997. 32 pgs. Ages 4 – 8
Also published in Chinese. Available as VHS video
